Children With Chronic Diseases

Chronic health problems (both chronic diseases and chronic disabilities) are usually defined as a state that has lasted> 12 months and is severe enough to limit activities of daily life. Depending on the criteria, the incidence of chronic health problems in children was estimated at 10-30%. Examples of chronic diseases are bronchial asthma, cystic fibrosis, congenital heart disease, diabetes, attention deficit and hyperactivity disorder and depression. Examples of chronic disability are motor deficits or paralysis in myelomeningocele, impaired hearing or eyesight, cerebral palsy and loss of function of a limb. Effects on Children Children with chronic health problems may be limited in some activities that often have pain, often feel uncomfortable showing a pathological growth and a different development and need to be more hospitalizations, outpatient controls and therapies endure. Children with severe disabilities are not able to point to some extent able to school or participate in activities with their peers. The reaction of children to a chronic illness or disability depends primarily on their level of development at the time at which the problem occurred for the first time. Children with chronic problems that have occurred in infants for the first time, will behave differently than children whose chronic problem occurred for the first time during adolescence. School children might suffer, do not go to school and be able to build relationships with peers the most. Parents should encourage confidence within the capabilities and avoid exaggerated care. Adolescents may have to struggle to be independent if they have to take from their parents or other persons claimed for many of their daily needs help. Adolescents have v. a. their difficulties to be as viewed differently than their peers. The healthcare workers should advocate that the hospital care of children is appropriate with chronic diseases. Age Appropriate playroom and education can be set up under the supervision of specially trained personnel. Children should be encouraged as much as possible to deal with peers. So that the family can adjust to what to expect during hospitalization, it is desirable that the family all measures and plans are explained. Thus, fears caused by uncertainty can be avoided or reduced. Impact on the family to have a chronically ill child, can lead to many problems for families. So it may mean the end of hope of having an “ideal child” or cause the siblings are neglected. High overspend on the families to come as well as a considerable expenditure of time. By itself (apparently) contradictory processes in medical care can arise confusion. Opportunities (. Eg, the family members who care for the children primarily, not return to the workforce) are missed; it can lead to social isolation. The siblings are jealous because of the special attention to the sick child. Especially with previously existing problems within the family, it may eventually come to the separation. Diseases and abnormalities that affect the appearance of the infant (z. B. cleft lip and palate or hydrocephalus) may lead to a restricted bond between the child and the family members or the serving person. Once the diagnosis of a malformation is found, parents can shocked to react negatively angry, sad, depressed, guilty or anxious. These reactions can occur at any time of the child’s development. Every parent can be located in a different stage of processing and acceptance, making it difficult to communicate. Some parents let their anger on the dentist, others looking again at the stage of denial, many “second opinions” about the state of their child. Coordination of care without appropriate coordination of the measures is crisis-oriented supply. Some will be offered twice, while another is neglected . the coordination of care requires knowledge of the overall condition of the child and his family and his support system and the community in which they come to fruition. the people medically involved, who care for chronically ill children must ensure that someone processes coordinated. Sometimes the coordination can be taken by a parent. However, the processes can be so complicated that even the most skilled parents need support Others who which. could take over coordination, the pediatrician, the staff of the special discipline, in which the child is fed or outpatient pediatric nurse are. Regardless of who is responsible for coordinating, the families and the children must be partners in this process. As a rule, children of parents with a low income are worse off, partly because they have less access to care and coordinating social institutions. For some children in a terminal stage of the disease to stay in a hospice makes sense.

Health Life Media Team

Leave a Reply